Resources

Below are links to printable documents with helpful information about kidney health:

Online Information Sources

The National Institute of Diabetes and Digestive and Kidney Diseases has extensive information about kidney disease online at https://www.niddk.nih.gov/health-information/kidney-disease.

IPRO ESRD Network of New York Network 2 has information about dialysis care at https://esrd.ipro.org/about-our-networks/about-us/network-of-new-york/

The organization also processes grievances from patients, their representatives, family members, care partners, professionals, advocates, and state survey agencies, related to the quality and safety of care in ESRD certified facilities. More details are at https://esrd.ipro.org/patients-family/grievances-concerns/

The Regional Center of Excellence for Transplantation and Kidney Care at ECMC is our local transplant center. Click here for more information.

Having Your Donor Find You!

Those in need of a kidney transplant can learn strategies for reaching potential living donors through a program now available online. The Kidney Foundation of Western New York has partnered with the Living Kidney Donors Network to make the video-based program available to people in our region.

The program is free and kidney patients, families and medical professionals can register online at https://havingyourdonorfindyou.org/kfwny/

 

Harvey Mysel, a two-time living kidney transplant recipient and founder of the not-for-profit Living Kidney Donors Network (LKDN), has been helping kidney patients for over a decade by giving workshops at transplant centers and dialysis clinics.

 

The Kidney Foundation of WNY helped arrange in-person workshops led by Harvey in 2017 and 2019. Participants told us that they found the program very helpful, and we're excited to be able to offer this valuable resource in a new way.

Support Groups

Renal Support Network (RSN) is here to empower people who have been diagnosed with kidney disease. Is that you? Connecting with people who have already gone down this path is crucial to survivorship. We will tell you what to ask, what to expect and how to deal with lifestyle changes. You will even make a few friends if you hang out with us. We can help you manage all the uncertainties and emotions. If you would like to be part of our kidney kin community, click here to join an online support group.